Ella was taken off Keppra in July 2012, after being seizure free the entire time on meds. She is doing great. Her night time ‘weirdness’ has decreased to almost nothing. When I ask her she says she still gets her sparkly arm occasionally but she doesn’t call out to us anymore for help. Her sleep walking which started after we weaned off meds only occurs if there is some stress or she didnt sleep well the night before. We are still very very strict about bedtime, routine, diet, supplements and we rarely (if ever) let her stay up late or get less sleep. Academically she is doing super and loves school. She has an awesome memory and loves playing piano and running track. So happy BRE is behind us…..we hope it is behind us forever.
